Up, up and away! Meet Ellie Lapowich #BISTRUN’s heroic TOP fundraiser

What can’t we say about Ellie Lapowich? Not only does she sit on our Mix and Mingle Committee and is a proud BIST supporter – but Ellie also manages to be one of our (if not the top) fundraiser at our 5K each and every year.  We challenge you to take her on and see if you can beat her fundraising amounts this year! 

 
That’s just one reason why Ellie is an ABI Hero – read more about her below!
 
5K Poster 2017
Be an ABI Hero! Register today! www.bist.ca/5k
BY: JENN BOWLER

Tell us a bit about your work:

I have had the privilege of working with people who have sustained brain injuries for almost twenty years now. Since 2004, I have owned and operated Innovative Case Management Inc. (ICM), which is a community-based company that provides case management and occupational therapy services, as well as Catastrophic and medical legal assessments.

Why do you participate in the BIST 5K?

I have participated in the BIST Run for the past several years because it is a great event that raises much needed funds for the wonderful programs offered by BIST. It is amazing to see such a great turnout year after year as members of our community, along with their families and friends (and often pets), cover the 5k while enjoying the camaraderie this event promotes.

BIST 5k top fundraiser Ellie Lapowich
ABI Super Fundraiser Ellie Lapowich

What does being a hero of brain injury mean to you?

I think the real heroes of brain injury are our clients who have sustained these injuries and work incredibly hard every day to overcome the many obstacles they now have to face. I have had the good fortune of meeting some amazing people who are true inspirations. I believe that our clients’ loved ones and caregivers are also heroes.

What is your favourite part about Race Day?

My favourite part of race day is watching brain injury survivours triumphantly cross the finish line.


Jenn Bowler is a social worker in the Trauma Program at Sunnybrook Health Sciences Centre and is a member of the BIST 5K Run, Walk, & Roll Committee.
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BIST Heroes 5K Dynamic Duo: Charles Gluckstein and his Sidekick Duke

Are you ready, heroes? Meet Charles Gluckstein – he says it’s his sidekick Duke who brings him out to the BIST Heroes 5K Run, Walk or Roll every year – but we’re pretty sure nothing on Earth could keep this ABI hero away from our 5K!

5K Poster 2017
Register today! www.bist.ca/5k

BY: JENN BOWLER

Tell us a bit about your work:

It is always heart wrenching, yet inspiring, to meet and work with individuals who have survived trauma including brain injuries. Most have a great will to persevere no matter the barrier. As a youngster my father exposed me to the places such as Variety Village and the Active Living Alliance where I could volunteer as a photographer for their special events and was amazed at the accomplishments and great spirit of individuals who had suffered from physical and mental challenges.

Once becoming a lawyer I immediately volunteered as a Director of the former BIST. Our firm [Gluckstein Personal Injury Lawyers] has always supported the Ontario Brain Injury Association of which my father was a founding director and similar organizations. I’m very passionate about helping individuals living with brain injuries as they are the most vulnerable victims, and the ones who need the most help with their recovery and changes in their lifestyle.

Charles Gluckstein swims in a lake with his dog Duke
True ABI Heroes: Charles Glucksten and Duke

Why do you participate in the BIST 5K?

It’s Duke (my dog) who forces me to run the BIST 5K! He loves outdoor activities and being around people so he brings me along to drive him to the event. But in all seriousness, I participate in the BIST 5K event with my family because I believe it supports a great cause and one that is and has been close to our hearts.

What does being a hero of brain injury mean to you?

To me, a hero of brain injury is someone who has sustained an injury and is working hard every day to overcome the challenges they face, and tries every day to be better than they were the day before. I try to help those with brain injuries to receive financial, moral and medical support, but I am by no means the hero, they are.

What is your favorite part about race day?

My favorite part of race day is seeing everyone come together on an equal footing. You have brain injury survivors, community leaders and medical and legal professionals bringing their families to participate together towards the same goal. Once the suit and ties are off and the medical gowns are put away, the egos are put away as well. We are all there to have a good time and interact with one another, not as professionals, patients, referral sources, caregivers but instead as humans.


Jenn Bowler is a social worker in the Trauma Program at Sunnybrook Health Sciences Centre and is a member of the BIST 5K Run, Walk, & Roll Committee.

Meet the fastest ABI heroes in the park: Garvin Moses & Kathleen Lawrence

BY: JENN BOWLER

As we gear up for BIST’s Heroes 5K Run, Walk or Roll on October 1st, we’re launching our 2nd Annual Heroes of Brain Injury Series, highlighting some ordinary folk with extraordinary ABI superpowers who come out to our 5K each year.

Read about our fastest heroes on Race Day – Garvin Moses and Kathleen Lawrence – below. But just so we’re clear, we know everyone who comes out to our 5K is a hero – no matter how fast they run, walk or roll!

Fastest BIST Run runners Garvin Moses and Kathleen Lawrence
 

REGISTER TODAY! WWW.BIST.CA/5K

 

 

Fastest Female: Kathleen Lawrence

RUN TIME: 21 min 33 sec

  1. Tell us a bit about your work:

    I work as an Occupational Therapist (OT) with Function Ability Rehabilitation Services, as an OT for approximately seven years now and with my role at Function Ability for over two years. With Function Ability, I work with people who have sustained a variety of traumatic injuries including brain injury; most of the clients I work with have been involved in motor vehicle collisions. I work with my clients to help support their recovery process and enable them to return to their activities of normal life and re-engage in their meaningful occupations. I love what I do and it has been a very fulfilling career thus far.

Kathleen Lawrence holds up her race number after a race
BIST Heroes 5K Run, Walk & Roll Fastest Female –  Kathleen Lawrence
  1. Why do you participate in the BIST 5K?

I participate in the BIST 5K because I love running and because of my work with people living with brain injury. This race is helping further community participation, raise money and increase brain injury awareness. To me, running is all about setting my own personal goals and working to achieve them, the BIST 5K allows opportunity to meet my own goals.

I started running in 2011 as I had always enjoyed doing physical activity and I found it to be an easy activity to integrate into my weekly schedule and to be a great form of stress management and effective to support my own work / life balance. In order to help motivate myself to commit to running, I registered and ran my first half-marathon in the fall of 2011. I definitely experienced a ‘runner’s high’ after that race and since then, I’ve completed many half marathons and races from 5 to 30 km. I ran my first marathon in 2015 and have since completed four full marathons including qualifying for and running the Boston Marathon this past spring! I enjoy running many races over each year but I always look forward to running the BIST 5K – this will be my third year participating in the event.

  1. What does being a hero of brain injury mean to you?

To me, heroes are people who overcome obstacles and challenges to achieve something great. I think the true heroes of brain injury are the survivors, they are the ones working hard to overcome brain injury barriers to engage in their daily activities. In my role as an OT, I try to listen to my client’s concerns and challenges while reflecting and utilizing their strengths to help them progress towards their goals. Being a hero of brain injury could be providing support, having a positive attitude, engaging in reflective listening or simply just being there at the right time. There are brain injury heroes all around us, survivors, friends, family, caregivers, health care and legal professionals, and other rehabilitation team members. We all work together to fight brain injury.

  1. What is your favourite part about race day?

I enjoy the whole atmosphere of the race. The BIST 5km always has a special atmosphere about it where people come together to achieve a common goal, not only about participating in the event but creating brain injury awareness. I like the social atmosphere of the race and being able to spend time with other people to learn about their personal victories related to the event. There are always so many great success stories that occur at the BIST 5K; from just being able to attend the race, to running a first 5 km, to setting a personal best time – it is all about celebrating personal accomplishment. I also enjoy the feeling of crossing the finish line!

Fastest Male: Garvin Moses

RUN TIME: 19 min 40 sec

Fastest male runner at the BIST 5k Run, Walk or Roll every year - Garvin Moses
Faster than a speeding bullet: Garvin has won fastest male at our 5K since we began doing this race in 2011!
  1. Tell us a bit about your work:

The Neurologic Rehabilitation Institute of Ontario (NRIO) was my introduction to ABI and this field. I applied here shortly after graduating from the University of Windsor. I started off working as a rehabilitation therapist and slowly worked my way through the organization. I have been with NRIO for almost nine years and I currently manage two of their residential programs in Mississauga and south Etobicoke. Although at times it can be difficult managing two programs I have a great team of staff and therapists around me. I also really love the diversity of the two sites. The Mississauga program deals with more slow to recovery and non-ambulatory individuals, the south Etobicoke residence known as the SLA (supported living apartments) deals with higher functioning individuals and allows them to engage in rehabilitation in a much more independent environment. Working at the two different sites gives me an opportunity to work with two very different sub-groups of individuals as well as work with them in different points of their recovery.

  1. Why do you participate in the BIST 5K?

Put quite simply, I run the BIST 5K every year because I enjoy it. I have participated in the BIST run since it first started in 2011* and really enjoy the crowd that it attracts. I remember a few years where it was pouring rain and passing people on the road wearing ponchos and a huge smile on their face. I think BIST is about community and bringing people together and this is definitely an opportunity to do just that

  1. What does being a hero of brain injury mean to you?

I would never really categorize myself as a hero. As I mentioned earlier, I’m only able to do what I do because of the great people I work with. More times than not, I’m telling my clients that they are the ones who motivate me whether it’s being able to say a family member’s name for the first time, ambulating stairs, or finishing high school when they thought they would never be able to. In some cases, it could be finishing that 5K race they have been training for all year long.

  1. What is your favourite part about Race Day?

I really do like the sense of community that is involved in this race. It allows survivors and service providers to come together in a non-threatening environment. From a selfish perspective, I also enjoy hanging out by the finish line to see the smiles and looks of fulfillment as people cross the finish line.


Jenn Bowler is a social worker in the Trauma Program at Sunnybrook Health Sciences Centre and is a member of the BIST 5K Run, Walk, & Roll Committee.
 

What we don’t like to think about, but need to prepare for

Do you ever think, what would you do if your spouse was in a serious accident?

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Theresa and Norm McColl at Theresa’s college graduation.

Who pays the bills? How are they paid? Do you have access to your spouse’s bank account?

And the big question: do you have a will and power of attorney (POA)? Do you know where they are?

If you answered ‘yes’ to these questions, I applaud you. You are prepared.

Regardless of our age, many of us think we’re too young to worry about the practical details of what would happen if we or our spouse were suddenly seriously injured or deceased. These are difficult topics to talk about, and we are like to think ‘it’ll never happen to me’. That’s what my husband, Norm, and I thought.

One day, we drove past a place that did wills and power of attorneys. Norm said, “We don’t need a will and power of attorney.”

But something in me felt differently, and I insisted we get them done.

I am so glad we did. A little while later, on Thursday, April 28, 2011 things changed for us forever when Norm was in a very serious car accident.

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This photo collage represents Norm’s passions before his injury. From top (R-L) logos from Guelph Storm Hockey, Kinsmen Club, Guelph Fire Department and Guelph Radio Station.

The pickup truck he was driving was T-Boned and ended up underneath a tracker trailer.

Norm was only able to mumble his name and where he worked before he lost consciousness. He was air lifted to Sunnybrook Hospital from where we live in Guelph. He had several broken bones, and we were soon to learn, a traumatic brain injury.

Until then, Norm lead a busy life. He worked at the firehall and had a radio show. He was, and continues to be, a Kinsmen.

Norm’s injury changed my world in countless ways, including the practical ones. Until then, he had been the bill payer and, in large part, the provider. In an instant, those duties became mine. I had no idea what to do, and I needed to find our POA.

All of our bank accounts and bills were under Norm’s name, and I needed the POA to gain access to them. Without the POA, who knows how long it would have taken before I could start to live and pay bills.

Norm and I at are 30th anniversary open house at the Elliott

A post shared by Theresa McColl (@mccolltheresa) on

I am very grateful Norm listened to me that day when we were out for a drive. I am glad that our wills and POA were in effect. If we had just said, “Oh, that’s just for old people,” and drove by, I would have been in a heck of a mess.

After hearing my story,  what are you waiting for? Are you prepared?

Please don’t wait, tomorrow, may be too late.


After her husband’s injury, Theresa went back to school to become a Personal Support Worker. She has taken courses in brain injury, and is now a full time caregiver. You can follow her on Instagram, HERE

Super Simple, Decadent Salted Caramel Sauce

BY: CHEF JANET CRAIG

This simple, decadent sauce for either fresh fruit or ice cream is the current trend, ‘salt with sweet.’ Enjoy this weekend, or, heck, anytime!

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4 cups white sugar

¾ cup boiling water

3 sticks salted butter (1.5 cups)

¾ cup whipping cream

4 tsp salt – this is where you can use specialty salts such as Fleur de Sel (find out how to fake speciality salts, HERE)

  1. In a heavy saucepan, place sugar on medium heat and watch it caramelize. This is a lengthy process and you can’t leave it. Stir with a wooden spoon – not a metal one – as this will get too hot to hold.
  2. When the mixture is as golden as you wish (it turns brown quickly) remove from heat.
  3. Carefully pour in boiling water, stirring constantly.
  4. Add butter and whipping cream and keep stirring until texture becomes creamy.
  5. Add salt to taste.

This recipe can be halved. I store it in sterilized jars in the fridge for two weeks or freeze it for a gift.

Chef Janet Craig’s recipes are simple, healthy, delicious and ABI friendly.  You can find out more about her HERE.

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Fatigue and the heat wave

BY: MARK KONING

There is a saying, ‘no two brain injuries are alike.’

This is true, every acquired brain injury is indeed different. But these horrid ABIs share some commonalities, and one in particular is fatigue.

people walking on a busy sidewalk in the summer
photo credit: Holographic Circus Wume / Aural States via photopin (license)

Similar to brain injury, fatigue is invisible. I find it to be hiding in the corners of my brain, lurking in the shadows. It seems to be ready to jump into action at any given time of the day. A nap, or extra rest, does not cure it.

Fatigue:

extreme drowsiness, typically resulting from mental or physical exertion or illness.

I’m not sure if people understand the effect fatigue has on someone living with a brain injury. I find it comes in waves and at various levels of low, mild and extreme.

It is a silent paralyzer, and never a pleasant experience. It is disorienting. One could almost wonder how much worse it possibly get?

Remember last summer? 2016 was the hottest year on record. This summer we have some relief, but the heat and humidity persist on most days, and they are a lethal instigator of fatigue.

Close up of an outdoor thermometer reading 100 degrees
photo credit: jo3design [DSP] May 18: Heat Wave via photopin (license)
While I’m not sure what is the best way to beat this devastating duo of fatigue and the heat wave, I know there must be a way to deal with it.

Perhaps it is inner strength, or knowing how to slow yourself down and breathe. Maybe the answer is to go for a nice cool swim or take a cold shower. Regardless of how staggering it can get, like with many things, I will get through it and survive.

I’m sure any of us who come up against these monsters can do the same. (And remember, fall is just around the corner.)

But sometimes I wonder, which is harder? Dealing with the fatigue or dealing with the fact that others don’t understand why I’m dealing with the fatigue. Maybe it is me not always telling people that I’m trying to deal with the fatigue.

Wow, that’s confusing, but that is also brain injury.

Mark’s passion to lend a helping hand, offer advice and give back has developed into a moral and social responsibility with the goal of sharing, inspiring and growing – for others as well as himself. His experience as a survivor, caregiver, mentor and writer has led to his credibility as an ABI Advocate and author of his life’s story, Challenging Barriers & Walking the Path. Follow him on Twitter @Mark_Koning or go to www.markkoning.com

How you can help a low cost physiotherapy program stay affordable

BIST members had the opportunity to learn about Team Theraputix’s ODSP Program – which allows people on fixed incomes to receive physiotherapy for just $50 a month – at a Community Meeting last fall.

At our meeting, many of us were amazed at the generosity of the program, which was created to ensure people who would otherwise not be able to afford crucial physiotherapy services, access the support they need. Many of Team Theraputix’s clients have brain injuries.

Like any private physiotherapy clinic, Team Theraputix is a business, they need to watch their bottom line in order to survive. But their ODSP Program literally puts people before profits. How often do you see a business do that?

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Victoria Tolmatshov (L) poses with Team Theraputix’s ‘Therapy Bear’ with BIST programs coordinator, Julie Notto (R) at our November 2016 Community Meeting

Now Team Theraputix needs your help – they are being forced to raise the cost of their ODSP program due to financial constraints. They don’t want to. As many of us know too well, when you’re on a fixed income, literally every penny counts. 

You can help Team Theraputix by attending and making a donation at their Barbecue on Saturday August 5th, at the Team Theraputix Office or by sending an e-transfer to: info@teamtheraputix.ca

And you can read why and how Victoria Tolmatshov, owner of Team Theraputix, decided to start the ODSP Program, below. Let’s do what we can to keep this amazing program going.

BY: VICTORIA TOLMATSHOV

Imagine, for a moment, that you or your loved one have sustained a traumatic injury. Imagine getting that phone call from the hospital or being rushed there. Imagine that your family is in a state of crisis, but doing everything to keep it together. Imagine that conversation with the doctor when you are told that your life will never be the same again.

Fast forward to the discharge from the hospital. There is nothing else they can help you with. You take a few days to settle into your new life. You start making phone calls. You realize that OHIP will not take you very far. You realize that your journey will be very difficult.

You finally find a private rehabilitation centre which can offer you assistance in your recovery process. You become hopeful. Now, imagine seeing how much this new hope will cost you and suddenly your heart drops into the pit of your stomach. You realize that you do not have that kind of money. Imagine feeling that disappointment while pushing back tears.

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Team Theraputix in action (Photo courtesy of Victoria Tolmatshov)

I have sat across the table from too many individuals to count who are in that very situation. My heart broke watching them leave my clinic knowing that there was nothing I could do to help. Constantly reminding myself that this is a business and there was a fee for services- just like everywhere else. I stayed awake at night thinking about these people. Rehabilitation is just one of many things a person with a traumatic injury has to deal with and there weren’t any options available to make the process easier.

In January of 2014, after another meeting with a family unable to pay for our program, I decided that it would be the last time I ever disappointed someone in need of help.

I started doing my research and found that most people who were unable to afford private therapy were receiving Ontario Disability Support. I was shocked to find out that the maximum funding was just over $1100.00 per month. I realized that we live in a society where many people in a vulnerable situation just fall through the cracks and do not receive adequate support from the government.

I decided to make a difference. I created a low cost physiotherapy program for those receiving ODSP. The program offers one on one physiotherapy two to three times per week (eight to twelve per month) for $50.00* per month.

Team Therapeutix Therapy Bear shows physiotherapy treatment on owner Victoria Tolmatshov
Therapy Bear demonstrates physiotherapy treatment on Victoria Tolmatshov

I am unbelievably proud of this program and all of our clients who have made amazing progress finally getting the help they need and deserve.

I am happy to know that we can now offer people options and I am overjoyed knowing that I will never have to disappoint someone in need of my help again.

*Victoria wrote this piece before needing to change the fee structure of the program.

Victoria Tolmatshov is the owner of Team Theraputix

Support The Team Theraputix OSDP Program!

Barbecue – Saturday, August 5th, 12-4 pm, Register HERE

send an e-transfer to: info@teamtheraputix.ca

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